Talking to children with #bleedingdisorders about our community’s difficult history can be a very touchy proposition for parents. It’s an individual decision whether to broach the subject and determining when is the right time to talk to a child about our legacy is just as tricky. In today’s Infusing Love blog, CEO & President and #hemophilia mom discusses how she’s dealt with this issue […]
Read moreDirect-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation 03 February 2017 New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis C patients should be screened for hepatitis B before starting treatment with new Direct-acting Antivirals (DAAs). If patients are infected with both viruses this does not preclude treatment but this should be […]
Read moreContaminated Blood Scandal Hello everyone, Here we are in 2017, over 40 years since the mass infections to thousands of haemophiliacs through the use of contaminated blood products began. With your help I believe we can push this petition to the 10,000 signatures required to warrant a response from the British government. Please help if you can by signing. The […]
Read moreWhy have we designed this questionnaire? We hope to establish a support network, drawing on the experience of people from a medical background as well as the personal testimonies and input from people living with a bleeding disorder. The intention is to gather and include as much factual data as possible to reinforce the need for better sexual health […]
Read moreWe are looking to increase our programs and services for men with hemophilia 50 and over. If you know someone who fits that criteria, we hope you’ll pass this survey along so we can find out what is needed! NHF is conducting a survey that will help us better support our community members who are 50 years old or […]
Read moreUT Austin Engineers Develop First-Ever Capsule to Treat Hemophilia Bloggerr December 28, 2016 In center, Sarena Horava, the study’s lead author and a recent Ph.D. graduate from the Cockrell School of Engineering, helping high school students. Cockrell School of Engineering AUSTIN, Texas — In the near future, hemophiliacs could be able to treat their disease by simply swallowing a capsule. Thanks to a […]
Read moreABOUT THE HIV STORY PROJECT Founded in 2009, The HIV Story Project is a San Francisco based non-profit organization focused on bridging HIV/AIDS with film, media and storytelling to fight the spread of the pandemic and the global stigma associated with it. We create our own film and media projects in addition to offering production services and digital media consultation […]
Read moreUT Austin Engineers Develop First-Ever Capsule to Treat Hemophilia Nov. 28, 2016 In center, Sarena Horava, the study’s lead author and a recent Ph.D. graduate from the Cockrell School of Engineering, helping high school students. Cockrell School of Engineering AUSTIN, Texas — In the near future, hemophiliacs could be able to treat their disease by simply swallowing a capsule. Thanks to a […]
Read moreSwedish Orphan Biovitrum AB: Elocta® Approved in Kuwait for the Treatment of Haemophilia A STOCKHOLM–(BUSINESS WIRE)– Swedish Orphan Biovitrum AB (publ) (SOBI.ST) (Sobi™) today announces that the Ministry of Health in Kuwait has approved Elocta® (efmoroctocog alfa), a recombinant human factor VIII Fc-fusion protein with an extended half-life, for the treatment of haemophilia A. Elocta is the first recombinant factor VIII Fc […]
Read moreProstate Cancer Not More Common in Hemophiliacs Jody A. Charnow, Editor February 03, 2015 NEWS IN BRIEF Prostate Cancer Not More Common in Hemophiliacs Hemophilia patients have a higher incidence of cancers, but not prostate cancer. Patients with hemophilia have a higher incidence of cancers overall compared with the general population, but notprostate cancer (PCa), according to a […]
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