April 2022 Today marks more than 2.5 years on from giving my oral witness statement to the Infected Blood Public Inquiry. Sadly, we are still seeing a victim of this scandal die every ninety six hours, as the commitments made by the British government remain without action. In my closing statement I spoke from the heart and I […]
Read moreHaemophilia Society Summaries From The Inquiry Hearings 13th October 2020 The Infected Blood Inquiry heard evidence from Dr Brian Colvin, director of the Royal London’s haemophilia Centre from 1977-2007. In four days of hearings, there were also presentations on Oxford Haemophilia Centre and St Thomas’ Haemophilia Centre as well as the conclusion of a presentation into the role of Professor […]
Read morePRESS RELEASE 17/09/2020 Lord David Owen will give evidence to the Infected Blood Inquiry as it reopens on Tuesday 22nd September The UK’s largest ever statutory inquiry, The Infected Blood Inquiry, chaired by Sir Brian Langstaff, will reopen on Tuesday 22nd September with former Health Minister Lord David Owen due as its first witness of this session. Lord Owen’s evidence […]
Read moreThe Infected Blood Inquiry The Inquiry will examine why men, women and children in the UK were given infected blood and/or infected blood products; the impact on their families; how the authorities (including government) responded; the nature of any support provided following infection; questions of consent; and whether there was a cover-up. Inquiry News & Updates September 2020 Inquiry publishes […]
Read more70 Years of support The Haemophilia Society The path for anyone trying to bring about change is never easy and over the decades I have thought about giving up. But anyone who knows me will also know that is never really an option for me as I do not give up. Change is happening and my article published in […]
Read moreCancellation of the WFH 2020 World Congress in Kuala Lumpur It’s with great sadness—and heavy hearts—that we must inform you that the World Federation of Hemophilia has taken the difficult, but necessary, decision to cancel the WFH 2020 World Congress planned to take place in Kuala Lumpur, Malaysia, from June 14 to 17, 2020. This decision was taken […]
Read moreThis is Colin a gorgeous little boy who will live on in my heart forever. It’s because of him and the many others who were murdered by those responsible for their care that gives me the strength to fight for justice and the protection of future generations. Love to Jan & big Colin today and always. For those who do not […]
Read moreOne gay man is uncovering the failures in hemophilia treatment Story by: Bobby Hristova | Illustration by: Jordan Mak Mark Ward has been fighting for his life since he was born. At three-months-old, doctors diagnosed him with severe hemophilia. At 14, he learned he was HIV positive. Then, Ward found out he had hepatitis C. Now, 49-years-old, the number of […]
Read moreDEATH OF STEVE DYMOND We are deeply saddened to have to tell you that Su Gorman’s husband, Steve Dymond, passed away in the early hours of this morning. Su wanted you all to know. Although Steve had responded well to the new treatment, and had ‘cleared’ the Hep C virus, his liver was very badly damaged, and over recent months […]
Read moreThe Contaminated Blood & Blood Products Public Inquiry The Inquiry will examine why men, women and children in the UK were given infected blood and/or infected blood products; the impact on their families; how the authorities (including government) responded; the nature of any support provided following infection; questions of consent; and whether there was a cover-up. For more details, […]
Read more