Bleeding Disorder Archives

SPORADIC CJD CASES IN THE UK BLEEDING DISORDERS COMMUNITY REPORTED

28th May 2018 Mark Ward

Sporadic CJD cases in the UK bleeding disorders community reported The sporadic form of the disease, also known as sporadic Creutzfeldt-Jakob disease (CJD), or classical CJD, accounts for approximately 80% of all recognised prion disease. Sporadic CJD occurs in every country with a remarkably similar incidence: approximately one person in every million develops sporadic CJD per year. Sporadic prion disease The sporadic form of the disease, […]

Haemosexual Is Going Down Under

2nd March 2018 Mark Ward

What’s that you say Skip? Haemosexual is going Down Under… Survivor? Victim? Activist? Teacher? Fighter? I could apply all of the above labels to my life so far but the one I prefer to use is “Human being.” From the moment HIV / AIDS emerged, sexuality and sexual health became almost off limits within the bleeding disorder […]

Information

World Hemophilia Day 2017 message from WFH President Alain Weill

17th April 2017 Mark Ward

World Hemophilia Day 2017 message from WFH President Alain Weill “It is our mission to improve and sustain care for all people with inherited bleeding disorders, including the girls and women within our community. Whether women have a bleeding disorder themselves or are part of the support network for someone else within our community, we need to recognize that there […]

Haemophilia

World Haemophilia Day 2017

16th April 2017 Mark Ward

World Haemophilia Day 17th April 2017 As the sun rises and the haemophilia world awakes, the activities to mark World Haemophilia Day 2017 will bring fun, laughter and joy. The kind of day everyone can appreciate, bleeding disorder or not. It is also a day of mixed emotions because those who have access to treatment will celebrate their lives, […]

Haemophilia

Mental health – It’s time to talk.

5th February 2017 Mark Ward

Mental health – It’s time to talk. 11:03 31st January 2017 by Tom Knight Anxiety, depression, suicide. Three things that seem to be hitting our community hard. Over the last few months I’ve seen so many stories of people speaking out, I’m pleased mental health is finally getting the attention it deserves, it’s about time. The world is changing, […]

Mental Health

10 Myths About Anal Sex That Might Surprise You!

24th January 2017 Mark Ward

10 Myths About Anal Sex That Might Surprise You! Anal Sex Myths and Facts Anal Sex Myths Many people still consider anal sex to be taboo. But according to a recent reportfrom the U.S. Centers for Disease Control and Prevention, 36% of men have tried it at least once. That’s a lot of guys when you think about it. Talking about “anal” can […]

Sexual Activities

Von Willebrand Disease: the Under-the-Radar Bleeding Disorder

11th October 2016 Mark Ward

Constant nosebleeds, persistent bruising and super-heavy periods are signs you shouldn’t dismiss. By Lisa Esposito | Staff Writer Oct. 7, 2016, at 10:03 a.m. Von Willebrand Disease: the Under-the-Radar Bleeding Disorder This common bleeding disorder affects up to 1 percent of the U.S. population. (GETTY IMAGES) You’ve probably heard of hemophilia – with its history among European royalty – but maybe not about von […]

Von Willebrand Disease

NEWS- A Milestone for Haemosexual

6th October 2016 Mark Ward

European Haemophilia Consortium – Update The 2016 EHC Annual Conference is now officially closed. Many thanks to all speakers, moderators, delegates, volunteers and the Foreningen for blødere i Norge for making this event a success! We are already looking forward to our 2017 Conference in Vilnius! Wishing everyone a safe trip home! Photo Further update will be posted when […]

Sex – Urethral Sounding

29th April 2016 Mark Ward

Urethral Sounding “Cock Stuffing” Having a bleeding disorder doesn’t mean that you can’t enjoy various activities or a fulfilling sex life. Have fun and bear in mind that there is nothing you can’t do. Although some activities do involve high risk and dangers to someone with a bleeding disorder and discretion is advised. Cock-stuffing, or “sounding” […]

Sexual Activities

What is Haemophilia?

31st October 2015 Mark Ward

What is Haemophilia? Haemophilia was the first bleeding disorder to be identified and it is also the most famous. A lot of people know that Queen Victoria carried the gene for Haemophilia and that Alexei Nikolaevich, Tsarevich of Russia, famously had the condition. As the video (above) explains it has usually been seen as a condition that affects […]

Haemophilia