Haemophilia Joint Damage & Living with Pain
Haemophilia was the first bleeding disorder to be identified and it is also the most famous.
A lot of people know that Queen Victoria carried the gene for Haemophilia and that Alexei Nikolaevich, Tsarevich of Russia, famously had the condition.
Haemophilia has usually been seen as a condition that affects men. However, these days it is widely recognised that many women who carry the affected gene have low clotting factor levels and can experience bleeding issues. So, women can have Haemophilia too.
There are three main types of Haemophilia. If you have Haemophilia A then you aren’t producing enough Factor VIII. In Haemophilia B it is Factor FIX which is the problem. People who don’t have enough Factor XI are sometime described as having Haemophilia C as well.
This video shows joint function in Haemophilia with bleeds and complications.
Designed to be useful to children and their families but also valuable to people of all ages, this video uses 2D and 3D animation to explore what happens when someone with haemophilia has a bleed into one of their joints – which is the main problem with the disease and the commonest cause of disability over time.
Five Lives was produced for people living with bleeding disorders who are affected by chronic joint pain. Five individuals with Haemophilia talk about their own experiences of coping with chronic pain. The information in this DVD should not be treated as medical or lifestyle advice. People living with bleeding disorders should always consult their Haemophilia consultant and physiotherapist about the medical management of their condition and any associated pain.