Haemophilia, Fitness & Exercise Fitness & Exercise Activity isn’t something to shy away from: in fact, it’s an important part of living well with hemophilia. By choosing the right kinds of activity with the right safety measures in place, exercise can benefit a person both physically, and mentally. THE MANY BENEFITS OF PHYSICAL ACTIVITY The benefits of exercise to […]
Read moreThe Birchgrove Group interview Mark Simmons Posted by Dan Farthing-Sykes The Birchgrove Group is a support group and platform for views for people with haemophilia, their wives and partners who were infected with HIV/AIDS and hepatitis C through blood products in Great Britain. There were 60 people in the Scottish bleeding disorders community who were infected with HIV in Scotland. Today, […]
Read morePAIN People who experience chronic pain often report that pain episodes can fluctuate in intensity and duration over time. This can manifest in a rapid onset of pain which can result in feelings of fear, depression and despair. For further information related to pain, click on the links below. Pain – Haemophilia My Pain Diary – 2016 Tips For […]
Read moreHaemophilia was the first bleeding disorder to be identified and it is also the most famous. A lot of people know that Queen Victoria carried the gene for Haemophilia and that Alexei Nikolaevich, Tsarevich of Russia, famously had the condition. Haemophilia has usually been seen as a condition that affects men. However, these days it is widely recognised that many women […]
Read moreThe Differences between Blood & Blood Products When people think of a “blood transfusion” we generally think of the image above. One whole bag of blood or a unit is most commonly used for patients who require an immediate “blood transfusion” for circumstances which could be seen as life threatening. The most frequently used example of […]
Read moreHaemophilia & the Contaminated Blood Scandal In order for every civilised society to move forward they must never forget the past. This could not be more significant to the global bleeding disorder community who almost lost an entire generation through the use of contaminated blood products. In 2015, I put together the information contained within this folder […]
Read moreBrighton AIDS Memorial Thursday 10th September 2009 After many years of fundraising, a sculpture created by Romney Mark Bruce was finally unveiled in Brighton yesterday by David Furnish, Sir Elton John’s partner. This unique and in my own personal view, beautiful, emotional and dignified work of art stands proud in New Steine Gardens. For the people of […]
Read moreKeeping Their Memory Alive: World AIDS Day Categories: Adult Men, Adult Women, Community Voices, Families, HFA News, Mom’s Blog: Infusing Love, Young Adults December 1, 2013 Had I been the Matthew my mother was expecting to give birth to, my life would have been astronomically different. I was born right around the time the first factor concentrates to treat hemophilia were available for home use. Had I […]
Read moreHaemophilia deaths, causes & record keeping The UKHCDO (United Kingdom Haemophilia Centre Directors Organisation) is required by the Department Of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the National Haemophilia Database, which is located in Manchester. The United Kingdom Haemophilia Centre Doctors’ Organisation is an association […]
Read moreABOUT US Haemophilia Scotland is a registered charity (No. SC044298) based in Scotland for people who have haemophilia, von Willebrands and other bleeding disorders. We are an organisation for anyone who has these blood-related conditions so we can talk to each other; and we provides a united representative voice when speaking with the medical profession, with government, with the rest of […]
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