Haemosexual Updates Public Inquiry into the Tainted Blood Scandal Mark Ward, Founder of Haemosexual & Haemosexual Australia As the public inquiry into the contaminated blood scandal progresses, a personal commentary, updates and Inquiry information from Mark Ward will be published, along with his and other victims reactions. Accompanying videos will also be available on the Haemosexual YouTube Channel. […]
Read moreHAEMOPHILIA NEWS The purpose of this page is to provide news articles related to Haemophilia. The information contained on this page includes various items, for example: Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine. Click on each link to read the News article: August Spark Therapeutics […]
Read moreContaminated Blood Scandal Updates & Media Panorama – Contaminated Blood: The Search for the Truth Published on 11 May 2017 It has been called the worst treatment disaster in the history of the NHS. More than 2,000 people died and thousands more were infected with HIV and Hepatitis C after being treated with contaminated blood products. All the victims […]
Read moreReview of haemarthropathy cases During a meeting at the Department for Work & Pensions yesterday, 18th June 2018, we discussed the information note below which provides details on the haemarthropathy administrative exercise due to start on Monday 25th June. Statement from Sarah Newton MP Following a meeting between my predecessor, Penny Mordaunt MP and the co-chair of the […]
Read moreSporadic CJD cases in the UK bleeding disorders community reported The sporadic form of the disease, also known as sporadic Creutzfeldt-Jakob disease (CJD), or classical CJD, accounts for approximately 80% of all recognised prion disease. Sporadic CJD occurs in every country with a remarkably similar incidence: approximately one person in every million develops sporadic CJD per year. Sporadic prion disease The sporadic form of the disease, […]
Read moreKuala Lumpur to host World Federation of Hemophilia Congress in 2020 The WFH World Congress is said to be the most significant international forum that brings together the entire global bleeding disorders community. The congress will see a line-up of speakers comprising leading experts in the field of inherited bleeding disorders and healthcare officials. The Congress will showcase the latest […]
Read moreOn the eve of meeting with Sir Brian Langstaff, chair of the public inquiry into the contaminated blood scandal, I am proud to share my interview with Gretchen Hammond. A LONE VOICE FOR LGBTQ HEMOPHILIACS IGNORED BY ADVOCACY ORGANIZATIONS, LGBTQ HEMOPHILIACS HAVE AT LEAST ONE RESOURCE Mark Ward, Founder of Haemosexual & Haemosexual Australia Even as the LGBTQ community grows […]
Read moreRyan White 1971 – 1990 28 years ago today, my hero Ryan White died at the age of 18. During the 1980s, Ryan became a national spokesperson and symbol of hope for the #haemophilia #hemophilia and HIV/AIDS community after being expelled from middle school banned due to community fears that the virus would spread to other children. Today, his mother […]
Read moreRoche shares drop after deaths of patients taking Hemlibra ZURICH (Reuters) – Swiss drugmaker Roche’s shares dropped on Wednesday after it told U.S.-based haemophilia advocacy groups that five patients treated with its medicine Hemlibra had died, while maintaining that the therapy was not the cause of the deaths. The shares slipped 2 percent by 0850 GMT — double the […]
Read moreHaemophilia A trial results ‘mind-blowing’ By James Gallagher Health and science correspondent, BBC News British doctors say they have achieved “mind-blowing” results in an attempt to rid people of haemophilia A. Patients are born with a genetic defect that means they do not produce a protein needed to stop bleeding. Thirteen patients given the gene therapy at Barts Health […]
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