Haemophilia News


The purpose of this page is to provide news articles related to Haemophilia.

The information contained on this page includes various items, for example:

Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine.


Click on each link to read the News article:


Image result for cnbc logo

Spark Therapeutics shares lose more than a quarter of their value as hemophilia gene therapy trial disappoints investors

A lab worker at Spark Therapeutics in Philadelphia, PA.

The Philadelphia-based company said that its treatment for hemophilia A reduced bleeds and the need for therapeutic infusions by 97 percent in a trial of 12 patients, and that it plans to start a late-stage clinical trial in the fourth quarter.

At the highest dose in the study, which the company plans to use in its phase 3 trial, five of seven patients saw levels of the protein important in hemophilia A restored to an average of 30 percent of normal, the company said when it reported second-quarter financial results.

Continue Reading:




Image result for farnham herald logo

Service honours haemophiliacs

The Treloars Former Pupils’ Association is inviting staff, pupils and friends of Treloar School and College, past and present, to join them this month for a special service at the Church of the Holy Rood in Holybourne, near Alton.

The service at the newly-refurbished church on July 28 will dedicate a new pew in memory of the haemophiliac boys who lost their lives after being given contaminated blood products

Continue Reading:



NHS England says yes to Roche’s Hemlibra


While NICE is England’s best known market access gatekeeper, NHS England is in direct control of specialised commissioning, and negotiates directly on pricing and reimbursement on a select number of specialised and high cost medicines.

Continue Reading:








In October 2017, the Department for Work and Pensions set up a working group with individuals affected by contaminated blood and blood products to hear about their experiences of the application and assessment procedures for disability benefits.

The working group highlighted issues with how claimants with haemarthropathy (a severe type of arthritis caused by bleeding into joints) were being assessed for Personal Independence Payment (PIP).

The need to review such PIP cases was identified and these reviews will begin today. No one will have their awards reduced as a result of this review.

The review will happen automatically and there is no need for people to do anything at this point, however, anyone with haemarthropathy who believes their case should be reviewed but does not receive a letter by 23rd July 2018 should phone the dedicated phone line 0800 121 4296 as soon as possible after that date.

For more information, please read the statement from the Department for Work and Pensions here.




Explaining Joint Bleeding in Hemophilia




Man Becomes First With Severe Hemophilia to Climb Seven Summits




The Challenges of Caring for Older Hemophilia Patients



10 Physical and Psychosocial Benefits of Physical Activity for Hemophilia Patients




Hemophilia News Today




14th December 2017

Jake Omer

British doctors say they have achieved “mind-blowing” results in an attempt to rid people of haemophilia A.

13th December 2017

Gene Therapy Nearly Eliminates Hemophilia B Bleeding Episodes, Trial Shows


17th May 2017

10 Benefits of Having a Service or Therapy Dog When You Have Hemophilia


31st March 2017

EHC Partners



22nd March 2017

Hemophilia B Hurts Education



20th March 2017

We are incredibly excited to announce our newest member organization


10th March 2017

Zepatier Found Effective


6th March 2017

Worlds Largest Genetic Hemophilia Research Repository Opens to U.S. Researchers



24th February 2017

Patient in Emicizumab Clinical Trial Dies



22nd February 2017

Distress Triggers Brain Changes in Hemophilia Children



9th January 2017






29th December 2016

More pain in absence of treatment



US FDA approves Shire’s Adynovate for use in children and surgical settings




23rd December 2016

Octapharma donates Nuwiq



22nd December 2016

Roche Emicizumab for Haemophilia A meets primary endpoint in phase III study



3rd December 2016

Data reinforcing the long-term safety and efficacy of extended half-life haemophilia therapies



2nd November 2016

Adverse events in trial dent hopes for Roche hemophilia drug




13th October 2016

UK Regulatory Agency Approves Continued Enrollment in BioMarin Phase 1-2 Study of BMN 270 in Hemophilia A



19th October 2016

Government centre shows the way to tackle haemophilia



7th October 2016

50 Years of Progress in Treating Hemophilia Not Fully Evident in US



21st September 2016

Shandong Taibang Biological receives Chinese nod to begin clinical trials on human coagulation factor IX product