Review of haemarthropathy cases During a meeting at the Department for Work & Pensions yesterday, 18th June 2018, we discussed the information note below which provides details on the haemarthropathy administrative exercise due to start on Monday 25th June. Statement from Sarah Newton MP Following a meeting between my predecessor, Penny Mordaunt MP and the co-chair of the […]
Read moreIn an exclusive interview for BBC Newsnight, Sir Elton John expressed his frustration that tech giants are not doing enough to keep people safe online and said he would urge people to stop using social platforms that don’t take the abuse seriously. Sir Elton spoke to Kirsty Wark after delivering The Diana, Princess of Wales Lecture on HIV in […]
Read moreSporadic CJD cases in the UK bleeding disorders community reported The sporadic form of the disease, also known as sporadic Creutzfeldt-Jakob disease (CJD), or classical CJD, accounts for approximately 80% of all recognised prion disease. Sporadic CJD occurs in every country with a remarkably similar incidence: approximately one person in every million develops sporadic CJD per year. Sporadic prion disease The sporadic form of the disease, […]
Read moreKuala Lumpur to host World Federation of Hemophilia Congress in 2020 The WFH World Congress is said to be the most significant international forum that brings together the entire global bleeding disorders community. The congress will see a line-up of speakers comprising leading experts in the field of inherited bleeding disorders and healthcare officials. The Congress will showcase the latest […]
Read moreThe CHERUB HIV garden: A Life Without Walls Did you know… Walls across the path in the garden symbolise the stigma and fears of young people living with HIV Impression of hands, set as flowers into the steel-like bench, are taken from young people living with HIV, many of whom are reluctant to disclose their HIV diagnosis. Aquilegia, Iris ‘Blue […]
Read moreOn the eve of meeting with Sir Brian Langstaff, chair of the public inquiry into the contaminated blood scandal, I am proud to share my interview with Gretchen Hammond. A LONE VOICE FOR LGBTQ HEMOPHILIACS IGNORED BY ADVOCACY ORGANIZATIONS, LGBTQ HEMOPHILIACS HAVE AT LEAST ONE RESOURCE Mark Ward, Founder of Haemosexual & Haemosexual Australia Even as the LGBTQ community grows […]
Read moreRyan White 1971 – 1990 28 years ago today, my hero Ryan White died at the age of 18. During the 1980s, Ryan became a national spokesperson and symbol of hope for the #haemophilia #hemophilia and HIV/AIDS community after being expelled from middle school banned due to community fears that the virus would spread to other children. Today, his mother […]
Read moreHow Blood-Plasma Companies Target the Poorest Americans The industry’s business model depends on there being plenty of people who need cash quickly. Medicaid, housing subsidies, the Supplemental Nutrition Assistance Program—these are some of the things that make up the backbone of the U.S.’s social safety net. And the federal government, guided by President Trump’s proposed budget for 2019, is seeking to […]
Read moreExamples of individuals who are classified with sexual orientation discordance include people who either identified as gay or lesbian but had sexual contact with only the opposite sex or with both sexes, or individuals who identified as heterosexual but had sexual contact with only the same sex or with both sexes. According to the CDC’s Francis Annor, sexual orientation discordance in young […]
Read moreRoche shares drop after deaths of patients taking Hemlibra ZURICH (Reuters) – Swiss drugmaker Roche’s shares dropped on Wednesday after it told U.S.-based haemophilia advocacy groups that five patients treated with its medicine Hemlibra had died, while maintaining that the therapy was not the cause of the deaths. The shares slipped 2 percent by 0850 GMT — double the […]
Read more