Haemophilia Society Summaries From The Inquiry Hearings 13th October 2020 The Infected Blood Inquiry heard evidence from Dr Brian Colvin, director of the Royal London’s haemophilia Centre from 1977-2007. In four days of hearings, there were also presentations on Oxford Haemophilia Centre and St Thomas’ Haemophilia Centre as well as the conclusion of a presentation into the role of Professor […]
Read more70 Years of support The Haemophilia Society The path for anyone trying to bring about change is never easy and over the decades I have thought about giving up. But anyone who knows me will also know that is never really an option for me as I do not give up. Change is happening and my article published in […]
Read moreHAEMOPHILIA NEWS The purpose of this page is to provide news articles related to Haemophilia. The information contained on this page includes various items, for example: Developments of new clotting products, vaccination updates and haemophilia industry business along with other areas of this specialist field of medicine. Click on each link to read the News article: August Spark Therapeutics […]
Read moreWorld Federation of Hemophilia Congress 2018 I so sad to announce, I will not now be able to attend the World Federation of Hemophilia Congress in Glasgow. On Wednesday, 16th May, I was rushed to hospital and admitted with suspected pneumonia. Following treatment for what was thankfully a severe chest infection, I have been allowed home under strict instructions to […]
Read moreHaemophilia A trial results ‘mind-blowing’ By James Gallagher Health and science correspondent, BBC News British doctors say they have achieved “mind-blowing” results in an attempt to rid people of haemophilia A. Patients are born with a genetic defect that means they do not produce a protein needed to stop bleeding. Thirteen patients given the gene therapy at Barts Health […]
Read moreContaminated blood scandal to have ‘full statutory inquiry’ A “full statutory inquiry” will be carried out into the contaminated blood scandal that left at least 2,400 people dead, the government has announced. The decision was made after victims and families expressed strong views over the involvement of the Department of Health. The inquiry will now be the responsibility of […]
Read moreSiobhan Ryan Haemophiliac infected with HIV and hepatitis C after being given contaminated blood criticises Government Mark Ward outside the Houses of Parliament in London today and meeting Brighton MP Caroline Lucas. Stefan Rousseau/PA.. Mr Ward, who is medically retired after a career working for British Airways, said: “I am not at all surprised to hear about this. “The Department […]
Read moreISSUE IDENTIFIED IN BPL PLASMA PRODUCTS PRODUCTION 19TH JULY 2017 JEFFERSON COURTNEY The Department of Health (DH) published a statement (below) this morning regarding an issue identified during a routine inspection of Bio Products Laboratory (BPL) and their production of plasma derived blood products. The statement says that there was a problem with the computer software which controls the […]
Read moreThe Haemophilia Society has today issued a clear statement on what we believe on the Contaminated Blood issue. This is our stance, agreed by our Board of Trustees, and is the basis for our campaigning. This statement builds on the work of the Society since the 1980s but is a firm commitment from today’s Society and Trustees. The statement […]
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