World Federation of Hemophilia
World Federation of Hemophilia: Cornerstone of global development
For over 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders.
We save and improve lives by:
- Training experts in the field to properly diagnose and manage patients;
- Advocating for adequate supply of safe treatment products
- Educating and empowering people with bleeding disorders to help them live healthier, longer and more productive lives.
However, much more still remains to be done. The reality is that 75 per cent of people with bleeding disorders still receive very inadequate treatment or no treatment at all. The percentage is even higher for those with von Willebrand disease and rare factor deficiencies.
Our vision of “Treatment For All” is that one day, all people with a bleeding disorder will have proper care, no matter where they live. Treatment for All means:
- Proper diagnosis, management, and care by a multidisciplinary team of trained specialists
- Safe, effective treatment products for all people with bleeding disorders
- Expanding services beyond hemophilia, to those with von Willebrand disease, rare factor deficiencies, and inherited platelet disorders.
The World Federation of Hemophilia (WFH), an international not-for-profit organization, was established in 1963. It is a global network of patient organizations in 127 countries and has official recognition from the World Health Organization.
Our mission
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Updated February 2015
www.wfh.org/congress/en/home
Search the Global Treatment Centre Directory
www.wfh.org/en/page.aspx?pid=1264
Welcome to the Global Treatment Centre Directory, a directory of hemophilia treatment centres (HTCs) and hemophilia organizations worldwide. It is a useful resource for people who are travelling to other countries and as a directory of hemophilia treaters around the world. You can use the various search features to get a list of all the centres in a country you will be visiting or find an address of an organization or a person.
The Global Treatment Centre Directory was compiled using information from national hemophilia organizations, treatment centres, and various other sources. The WFH is grateful to its National Member Organizations for their assistance. It is updated daily (as changes are received).
Please send corrections to HTC_Directory@wfh.org
WFH Playlists are below:
WFH Humanitarian Aid Program
2016
To view the 3 videos click here: http://elearning.wfh.org/resource/dia…
The WFH “Diagnosis of hemophilia and other bleeding disorders: a laboratory manual” is the definitive how-to guide for the accurate diagnosis of hemophilia and other bleeding disorders. NOW AVAILABLE: Step-by-step video demonstrations of the three most important manual diagnostic techniques: APTT, one-stage FVIII assay, and FVIII inhibitor assay.
Each video features careful demonstration of correct technique, detailed explanations of the background theory of the assay, special considerations for issues of limited resources, discussion of the important reagents, as well as plotting and interpretation of typical results.
A look back at the Treatment for All video series. The series provides insight into how the WFH Humanitarian Aid Program is leading the global effort to improve access to treatment in developing countries and a look at the personal stories of those who are leading their
community.
A look at the shared responsibility, and commitment, of those who are working towards obtaining Treatment for All.
It is the efforts of extraordinary people who are helping the global bleeding disorders community obtain Treatment for All. Meet Mathieu, a man with an inspiring vision.
2015
2014
2013
50th Anniversary Videos
50th Anniversary Webcasts
2010
Treatment For All
Other Videos by WFH
Uploaded on 15 Jun 2010
This WFH video podcast features a conversation about Health Technology Assessment (HTA) and Comparative Effectiveness Research (CER). Hosting the discussion is Brian O’Mahony, past president of the WFH. He is joined by Dr. Michael Lauer of the National Heart, Blood and Lung Institute (USA), and health economist Adam Hutchings (UK).
Over the past 20 years, many developed countries have been able to provide an ample supply of factor concentrates for hemophilia treatment, with prophylaxis available for children and many adults. However, with the global economic recession, this environment is changing. HTA and CER measures are gaining in use as governments evaluate healthcare policies and make decisions about healthcare spending, presenting both challenges and opportunities to patient organizations and clinicians.
Source: World Federation of Hemophilia
