WFH: Report on the Annual Global Survey 2015 now available

Christine Herr, Data and Research Coordinator The Report on the Annual Global Survey 2015 is now available in print and online at www.wfh.org/globalsurvey. The report includes selected demographic and treatment-related data on people throughout the world with hemophilia (PWH), von Willebrand disease (VWD), other rare factor deficiencies, and inherited platelet disorders. The Report on the Annual Global Survey 2015 is […]

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WFH – Recipients Double As the WFH Humanitarian Aid Program Expands

Recipients Double As the WFH Humanitarian Aid Program Expands World Federation of Hemophilia – Oct 05, 2016   MONTREAL, Canada – October 5, 2016 – One year following the expansion of the World Federation of Hemophilia (WFH) Humanitarian Aid Program, the number of recipient countries went from 58 to 63, while delivered donations reached a landmark of 100 million international units (IU), […]

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Haemophilia & Exercise

Haemophilia, Fitness & Exercise Fitness & Exercise Activity isn’t something to shy away from: in fact, it’s an important part of living well with hemophilia. By choosing the right kinds of activity with the right safety measures in place, exercise can benefit a person both physically, and mentally.   THE MANY BENEFITS OF PHYSICAL ACTIVITY The benefits of exercise to […]

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Von Willebrand Disease: the Under-the-Radar Bleeding Disorder

Constant nosebleeds, persistent bruising and super-heavy periods are signs you shouldn’t dismiss. By Lisa Esposito | Staff Writer Oct. 7, 2016, at 10:03 a.m.   Von Willebrand Disease: the Under-the-Radar Bleeding Disorder This common bleeding disorder affects up to 1 percent of the U.S. population. (GETTY IMAGES) You’ve probably heard of hemophilia – with its history among European royalty – but maybe not about von […]

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NEWS- A Milestone for Haemosexual

European Haemophilia Consortium – Update The 2016 EHC Annual Conference is now officially closed. Many thanks to all speakers, moderators, delegates, volunteers and the Foreningen for blødere i Norge for making this event a success! We are already looking forward to our 2017 Conference in Vilnius! Wishing everyone a safe trip home! Photo   Further update will be posted when […]

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What is Haemophilia?

What is Haemophilia?     Haemophilia was the first bleeding disorder to be identified and it is also the most famous. A lot of people know that Queen Victoria carried the gene for Haemophilia and that Alexei Nikolaevich, Tsarevich of Russia, famously had the condition.   As the video (above) explains it has usually been seen as a condition that affects […]

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